Advice from "LC":
STAY PLUGGED IN
& ASK QUESTIONS
(In response to my post of 1/28/00.)
You are going through what I would consider a very natural stage
of being mad at your condition. I went through the same stage when I
The summer and fall of 1999 were not very pleasant for anyone
around me. Thank goodness for this list. At least we're able to plug
into others who have experienced the same situation. That doesn't make
it better, but there is a lot of information out there that causes us
to think and react.
I believe the greatest problem to solve outside of
ourselves is to find the right physician who at least seems to have
knowledge of the disease and is up to date with options.
to use information you pick up via the list in talking with your
physician. If nothing else, it challenges him/her to research and respond.
If they don't or can't respond intelligently, dump them and look
around. Special treatment centers are always an option, depending on your
insurance coverage and financial resources.
Keep plugged into this list and ask questions. Don't ever toss in the towel.
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